Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox

Author:

Oehrlein Elisabeth M.,Schoch Silke,Majercak Kelsie,Gressler Laura Elisabeth,Costantino Ryan C.,Love T. Rosie,Perfetto Eleanor M.,Bell Stacie,Daven Morgan,Deal Linda S.,Dungan Rachel,Fiol Julie,Frank Lori,Gore Beth,Harr Nicole,McElwee Newell,Moburg Christeen,Pashos Chris L.,Schneider Roslyn F.,Stokes Jonathan,Zagorski Jamie,

Funder

National Health Council

Allergan

AbbVie

Biogen

Boehringer Ingelheim

Gilead Sciences

Pfizer

Sangamo Therapeutics

Publisher

Springer Science and Business Media LLC

Subject

General Engineering

Reference35 articles.

1. Harrington RL, Hanna ML, Oehrlein EM, Camp R, Wheeler R, Cooblall C, et al. Defining patient engagement in research: results of a systematic review and analysis: report of the ISPOR Patient-Centered Special Interest Group. Value Health [Internet]. 2020. https://www.valueinhealthjournal.com/article/S1098-3015(20)30141-8/abstract. Accessed 2 June 2020.

2. Frank L, Basch E, Selby JV, Institute F the P-COR. The PCORI perspective on patient-centered outcomes research. JAMA. 2014;312:1513–4.

3. Facey K, Hansen HP, Single A, editors. Patient Involvement in Health Technology Assessment [Internet]. ADIS; 2017. Available from: https://www.springer.com/gp/book/9789811040672. Accessed 29 May 2019.

4. ICH Reflection Paper: Proposed ICH Guidelines Work to Advance Patient Focused Drug Development [Internet]. International Council for Harmonisation of Technical Requirements for Pharmaceuticals for Human Use (ICH). 2020 Nov. https://admin.ich.org/sites/default/files/2020-12/ICH_ReflectionPaper_PFDD_Endorsed-ForConsultation_2020_1118.pdf. Accessed 18 Sept 2023.

5. Center for Drug Evaluation and Research (CDER). Patient-Focused Drug Development: Collecting Comprehensive and Representative Input [Internet]. U.S. Food and Drug Administration. FDA; 2021. Available from: https://www.fda.gov/regulatory-information/search-fda-guidance-documents/patient-focused-drug-development-collecting-comprehensive-and-representative-input. Accessed 9 Aug 2021.

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