Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey-Reference-Cited by-同舟云学术

Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey

Published:2021-07-20 Issue: Volume: Page:
ISSN:1178-1653
Container-title:The Patient - Patient-Centered Outcomes Research
language:en
Short-container-title:Patient

Author:

Chow Andrea J.,Pugliese Michael,Tessier Laure A.,Chakraborty Pranesh,Iverson Ryan,Coyle Doug,Kronick Jonathan B.,Wilson Kumanan,Hayeems Robin,Al-Hertani Walla,Inbar-Feigenberg Michal,Jain-Ghai Shailly,Laberge Anne-Marie,Little Julian,Mitchell John J.,Prasad Chitra,Siriwardena Komudi,Sparkes Rebecca,Speechley Kathy N.,Stockler Sylvia,Trakadis Yannis,Walia Jagdeep S.,Wilson Brenda J.,Potter Beth K.^ORCID

Funder

Canadian Institutes of Health Research

Publisher

Springer Science and Business Media LLC

Link

https://link.springer.com/content/pdf/10.1007/s40271-021-00538-8.pdf

Reference35 articles.

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4. Cohen E, Berry JG, Camacho X, Anderson G, Wodchis W, Guttmann A. Patterns and costs of health care use of children with medical complexity. Pediatrics. 2012;130(6):e1463–70.

5. Doyle C, Lennox L, Bell D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open. 2013;3(1):e001570.

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