Exploring Child-Patient Autonomy: Findings from an Ethnographic Study of Clinic Visits by Children

Author:

Paron KristiORCID

Abstract

AbstractIn research into the involvement of children in decision-making about their health and treatment there is an over-reliance on interviews (with children, parents and doctors) as a research method. What actually happens during clinic visits in terms of child-adult communication and how children participate in decision-making has been largely overlooked. This study aims to fill this gap by exploring how child-patient autonomy functions in a child-parent-doctor triadic relationship. The study is based on ethnographic non-participatory observations of appointments with doctors involving 31 children and young adults ranging in age from 2 to 19 years. The study demonstrates that patient autonomy is not clearly attributed to either the child or the parent by the doctor, but is shared between them, and therefore child-patient autonomy is a relational process that is conceptualised as autonomy-making in this article.

Funder

Eesti Teadusagentuur

Publisher

Springer Science and Business Media LLC

Subject

Sociology and Political Science,Social Psychology,Health (social science)

Cited by 1 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Child Autonomy and Vulnerability in Healthcare;Children’s Well-Being: Indicators and Research;2024

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