Rare Diseases – Avoiding Misperceptions and Establishing Realities: The Need for Reliable Epidemiological Data-Reference-Cited by-同舟云学术

Rare Diseases – Avoiding Misperceptions and Establishing Realities: The Need for Reliable Epidemiological Data

Published:2010 Issue: Volume: Page:3-14
ISSN:0065-2598
Container-title:Rare Diseases Epidemiology
language:
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Author:

Groft Stephen C.,de la Paz Manuel Posada

Publisher

Springer Netherlands

Link

http://link.springer.com/content/pdf/10.1007/978-90-481-9485-8_1

Reference9 articles.

1. Centres of Reference for Rare Diseases in Europe: State-of-the art in 2006 and recommendations of the Rare Diseases Task Force. A technical and scientific report from an expert group of the European Union Rare Diseases Task Force. Available from: http://ec.europa.eu/health/ph_threats/non_com/docs/contribution_policy.pdf , Accessed: June 2010

2. Eurordis. EurordisCare2: survey of diagnostic delays, 8 diseases, Europe. http://www.eurordis.org/big_article.php3?id_article=454 , Accessed: June 2010

3. Guttmacher AE, Collins FS, Carmona RH (2004) The family history – more important than ever. NEJM, November; 351:22.

4. National Library of Medicine Programs and Services at http://www.nlm.nih.gov/ocpl/anreports/fy2008.pdf , Accessed: June 2010

5. NIH Announces Expansion of Rare Diseases Clinical Research Network. Press Release, NIH News, 2009 October. http://www.nih.gov/news/health/oct2009/od-05.htm , Accessed: June 2010

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