Democratizing Health Research Through Data Cooperatives
Author:
Publisher
Springer Science and Business Media LLC
Subject
History and Philosophy of Science,Philosophy
Link
http://link.springer.com/article/10.1007/s13347-018-0320-8/fulltext.html
Reference21 articles.
1. Blasimme, A., & Vayena, E. (2016). Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine. BMC Medical Ethics, 17(1), 67. https://doi.org/10.1186/s12910-016-0149-6 .
2. Blasimme, A., & Vayena, E. (2017). “Tailored-to-you”: public engagement and the political legitimation of precision medicine. Perspectives in Biology and Medicine, 59(2), 172–188.
3. Blasimme, A., Moret, C., Hurst, S. A., & Vayena, E. (2017). Informed consent and the disclosure of clinical results to research participants. The American Journal of Bioethics, 17(7), 58–60. https://doi.org/10.1080/15265161.2017.1328532 .
4. Blasimme, A., Fadda, M., Schneider, M., & Vayena, E. (2018). Data sharing for precision medicine: policy lessons and future directions. Health Affairs, 37(5).
5. Collins, F. S., & Varmus, H. (2015). A new initiative on precision medicine. The New England Journal of Medicine, 372. https://doi.org/10.1056/NEJMp1500523 .
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