Author:
Simwinga Musonda, ,Bond Virginia,Makola Nozizwe,Hoddinott Graeme,Belemu Steve,White Rhonda,Shanaube Kwame,Seeley Janet,Moore Ayana
Funder
Division of Intramural Research, National Institute of Allergy and Infectious Diseases
Publisher
Springer Science and Business Media LLC
Subject
Infectious Diseases,Virology
Reference30 articles.
1. MacQueen K, Bhan A, Frohlich J, Holzer J, Sugarman J. Evaluating community engagement in global health research: the need for metrics. BMC Med Ethics. 2015;16(1):1–9. This article reviews and described guidelines on CE. It draws and distinguishes perspectives of CE from normative guidelines (by national and international bodies), scholarly work (literature) and practical guidelines in the field. The article points to a lack of consensus regarding CE approaches, goals and indicators to measure its contribution in the context of health research.
2. Tindana P, de Vries J, Campbell M, Littler K, Seeley J, Marshall P, et al. Community engagement strategies for genomic studies in Africa: a review of the literature. BMC Med Ethics. 2015;16:24. This review article identifies ‘effective’ CE strategies necessary for the successful implementation of genomic studies in Africa. Challenges in identifying CE strategies included the lack of uniformity in the definition of key concepts such as community, and the lack of systematic evaluation of CE approaches. In addition, the choice of CE strategies depends on the goal of CE for the study.
3. Skidmore D. The ideology of community care. London: Chapman & Hall; 1994.
4. Black A, Hughes P. The identification and analysis of indicators of community strength and outcomes. Department of Family and Community Services. 2001. https://www.dss.gov.au/about-the-department/publications-articles/research-publications/occasional-paper-series/number-3-the-identification-and-analysis-of-indicators-of-community-strength-and-outcomes . Accessed 10 March 2016.
5. Kilifi. Consent and community engagement in diverse research contexts reviewing and developing research and practice. J Empir Res Hum Res Ethics. 2013;8(4):1–18. The article reports on a CE and consent workshop held in Kilifi. Kenya, in 2011. Participants were from different parts of the World and were involved in research and practice of CE and consent. The distinction between institutional wide and study specific CE (and hybrid of the two) was highlighted. The workshop critically reviewed processes for conducting CE and consent in research.