Parenting a Child with Phenylketonuria: An Investigation into the Factors That Contribute to Parental Distress-Reference-Cited by-同舟云学术

Parenting a Child with Phenylketonuria: An Investigation into the Factors That Contribute to Parental Distress

Published:2018 Issue: Volume: Page:91-100
ISSN:2192-8304
Container-title:JIMD Reports
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Author:

Ambler Olivia,Medford Emma,Hare Dougal J.

Publisher

Springer Berlin Heidelberg

Link

http://link.springer.com/content/pdf/10.1007/8904_2018_105

Reference39 articles.

1. Ambler ORS, Hare DJ (2018) A systematic review of the factors associated with well-being in parents of children with PKU. J Inherit Metab Dis Rep. (in press)

2. Blackledge JT, Hayes SC (2006) Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child Family Behav Ther 28:1–18

3. Bland JM, Altman DG (1996) Measurement error. Br Med J 4:744

4. Blau N, Van Spronsen FJ, Levy HL (2010) Phenylketonuria. Lancet 376:1417–1427

5. Bosch AM, Burlina A, Cunningham A et al (2015) Assessment of the impact of Phenylketonuria and its treatment on quality of life of patients and parents from seven European countries. Orphanet J Rare Dis 10:80

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