Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme-Reference-Cited by-同舟云学术

Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme

Published:2020-04-07 Issue:3 Volume:51 Page:892-905
ISSN:0162-3257
Container-title:Journal of Autism and Developmental Disorders
language:en
Short-container-title:J Autism Dev Disord

Author:

Crane Laura,Hearst Caroline,Ashworth Maria,Davies Jade,Hill Elisabeth L.

Abstract

AbstractSixteen adults (diagnosed or self-identified as autistic) participated in one of two iterations of a ten-week autistic-led programme, aimed at helping autistic adults learn more about autism within a peer group context. Motivations for taking part in the programme included a desire for: (1) exploration of autism; (2) empowerment; and (3) the development of practical strategies and coping mechanisms. Interviews were conducted upon completion of the programme and again 6 months later. Using thematic analysis, three themes were identified: (1) appreciation of the autistic-led nature of the programme; (2) unity in diversity; and (3) developing a positive, practical outlook on autism. These promising initial results highlight the value of autistic-led peer support for those recently diagnosed/identified as autistic.

Publisher

Springer Science and Business Media LLC

Subject

Developmental and Educational Psychology

Link

http://link.springer.com/content/pdf/10.1007/s10803-020-04486-4.pdf

Reference37 articles.

1. Alvares, G. A., Bebbington, K., Cleary, D., Evans, K., Glasson, E. J., Maybery, M. T., et al. (2019). The misnomer of ‘high functioning autism’: Intelligence is an imprecise predictor of functional abilities at diagnosis. Autism. https://doi.org/10.1177/1362361319852831.

2. Ayres, M., Parr, J. R., Rodgers, J., Mason, D., Avery, L., & Flynn, D. (2018). A systematic review of quality of life of adults on the autism spectrum. Autism, 22(7), 774–783. https://doi.org/10.1177/1362361317714988.

3. Bargiela, S., Steward, R., & Mandy, W. (2016). The experiences of late-diagnosed women with autism spectrum conditions: An investigation of the female autism phenotype. Journal of Autism and Developmental Disorders, 46(10), 3281–3294. https://doi.org/10.1007/s10803-016-2872-8.

4. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology., 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa.

5. Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E. (2019a). ‘Something needs to change’: Mental health experiences of young autistic adults in England. Autism., 23(2), 477–493. https://doi.org/10.1177/1362361318757048.

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