“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults

Author:

Lilley RozannaORCID,Lawson Wenn,Hall Gabrielle,Mahony Joanne,Clapham Hayley,Heyworth Melanie,Arnold Samuel,Trollor Julian,Yudell Michael,Pellicano Elizabeth

Abstract

AbstractIn this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: ‘conceptualising the Autistic family’, ‘creating Autistic community’, and ‘contesting Autistic identity’. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.

Funder

Cooperative Research Centre for Living with Autism

Macquarie University

Publisher

Springer Science and Business Media LLC

Subject

Developmental and Educational Psychology

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