Abstract
Abstract
Background
The internet, especially YouTube, has become a prominent source of health information. However, the quality and accuracy of medical content on YouTube vary, posing concerns about misinformation. This study focuses on providing reliable information about hereditary breast cancer on YouTube, given its importance for decision-making among patients and families. The study examines the quality and accessibility of such content in Japanese, where limited research has been conducted.
Methods
A nonprofit organization called BC Tube was established in May 2020 to create informative videos about breast cancer. The study analyzed 85 YouTube videos selected using the Japanese keywords “hereditary breast cancer” and “HBOC”, categorized into six groups based on the source of upload: BC Tube, hospitals/governments, individual physicians, public-interest organizations/companies, breast cancer survivors, and others. The videos were evaluated based on various factors, including content length, view counts, likes, comments, and the presence of advertisements. The content was evaluated using the PEMAT and DISCERN quality criteria.
Results
BC Tube created high-quality videos with high scores on PEMAT understandability, significantly outperforming other sources. Videos from public-interest organizations/companies received the most views and likes, despite their lower quality. Videos from medical institutions and governments were of superior quality but attracted less attention.
Conclusions
Our study emphasizes the importance of promoting accessible, easy-to-understand, and widely recognized medical information online. The popularity of videos does not always correspond to their quality, emphasizing the importance of quality evaluation. BC Tube provides a peer-reviewed platform to disseminate high-quality health information. We need to develop high-quality online health information and encourage the promotion of evidence-based information on YouTube.
Publisher
Springer Science and Business Media LLC
Subject
Pharmacology (medical),Radiology, Nuclear Medicine and imaging,Oncology,General Medicine
Reference36 articles.
1. Wimble M. Understanding health and health-related behavior of users of Internet health information. Telemed J E Health. 2016;22(10):809–15. https://doi.org/10.1089/tmj.2015.0267.
2. Purcell K. The state of online video. Washington DC. 2010. https://www.pewresearch.org/internet/2010/06/03/the-state-of-online-video/. Accessed 26 May 2023.
3. Routley N. Ranking the top 100 Websites in the world. 2019. https://www.visualcapitalist.com/ranking-the-top-100-websites-in-the-world/. Accessed 26 May 2023.
4. Anderson APM. Share of U.S. adults using social media, including Facebook, is mostly unchanged since 2018. 2019. https://www.pewresearch.org/fact-tank/2019/04/10/share-of-u-s-adults-using-social-media-including-facebook-is-mostly-unchanged-since-2018/. Accessed 26 May 2023.
5. Laforet PE, Yalamanchili B, Hillyer GC, et al. YouTube as an information source on BRCA mutations: implications for patients and professionals. J Community Genet. 2022;13(2):257–62. https://doi.org/10.1007/s12687-022-00576-1.