Barriers, motivators and strategies to increase participation in genetic research among Asian and Black families of autistic individuals-Reference-Cited by-同舟云学术

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Barriers, motivators and strategies to increase participation in genetic research among Asian and Black families of autistic individuals

Published:2024-08-13 Issue: Volume: Page:
ISSN:1868-6001
Container-title:Journal of Community Genetics
language:en
Short-container-title:J Community Genet

Author:

Tafolla Maira,Amador Raquel,Oyeyemi Motunrayo J.,Algaze Zach,Pandey Juhi,Goin-Kochel Robin P.,Sarver Dustin E.,Gulsrud Amanda

Funder

The Simons Foundation

Publisher

Springer Science and Business Media LLC

Link

https://link.springer.com/content/pdf/10.1007/s12687-024-00724-9.pdf

Reference51 articles.

1. Akinleye I, Roberts JS, Royal CDM, Linnenbringer E, Obisesan TO, Fasaye G-A, Green RC (2011) Differences between African American and white research volunteers in their attitudes, beliefs and knowledge regarding genetic testing for Alzheimer’s disease. J Genet Couns 20:650–659. https://doi.org/10.1007/s10897-011-9377-6

2. Bai D, Yip BHK, Windham GC, Sourander A, Francis R, Yoffe R, Glasson E, Mahjani B, Suominen A, Leonard H, Gissler M, Buxbaum JD, Wong K, Schendel D, Kodesh A, Breshnahan M, Levine SZ, Parner ET, Hansen SN, Sandin S (2019) Association of Genetic and Environmental Factors with Autism in a 5-Country cohort. JAMA Psychiatry 76(10):1035–1043. https://doi.org/10.1001/jamapsychiatry.2019.1411

3. Banda DR, Germain DS, McCaskill-Stevens W, Ford JG, Swain SM (2012) A critical review of the enrollment of black patients in cancer clinical trials. Am Soc Clin Oncol Educational Book 32(1):153–157. https://doi.org/10.14694/EdBook_AM.2012.32.88

4. Bonevski B, Randell M, Paul C, Chapman K, Twyman L, Bryant J, Brozek I, Hughes C (2014) Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups. BMC Med Res Methodol 14(1):42. https://doi.org/10.1186/1471-2288-14-42

5. Brandt AM (1978) Racism and research: the case of the Tuskegee Syphilis Study. Hastings center report. 21–29. https://doi.org/10.2307/3561468

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