European Reference Networks: challenges and opportunities

Author:

Tumiene BiruteORCID,Graessner Holm,Mathijssen Irene MJ,Pereira Alberto M,Schaefer Franz,Scarpa Maurizio,Blay Jean-Yves,Dollfus Helene,Hoogerbrugge Nicoline

Publisher

Springer Science and Business Media LLC

Subject

Genetics(clinical),Public Health, Environmental and Occupational Health,Epidemiology

Reference40 articles.

1. Bertier G, Cambon-Thomsen A, Joly Y (2018 Oct) Is it research or is it clinical? Revisiting an old frontier through the lens of next-generation sequencing technologies. Eur J Med Genet. 61(10):634–641. https://doi.org/10.1016/j.ejmg.2018.04.009

2. Commission Delegated Decision of 10 March 2014 setting out criteria and conditions that European Reference Networks and healthcare providers wishing to join a European Reference Network must fulfil (2014). Available at: https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX%3A32014D0286

3. Commission Implementing Decision of 10 March 2014 setting out criteria for establishing and evaluating European Reference Networks and their members and for facilitating the exchange of information and expertise on establishing and evaluating such Networks (2014). Available at: https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=OJ%3AJOL_2014_147_R_0007

4. Derbel O, Heudel PE, Cropet C et al (2017) Survival impact of centralization and clinical guidelines for soft tissue sarcoma (a prospective and exhaustive population-based cohort). PLoS One 12(2):e0158406. Published 2017 Feb 3. https://doi.org/10.1371/journal.pone.0158406

5. European Commission website. European Reference Networks (n.d.) Available at: https://ec.europa.eu/health/ern_en. Accessed 5 Aug 2020

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