Parents’ perspectives, experiences, and need for support when communicating with their children about the psychiatric manifestations of 22q11.2 deletion syndrome (22q11DS)-Reference-Cited by-同舟云学术

Parents’ perspectives, experiences, and need for support when communicating with their children about the psychiatric manifestations of 22q11.2 deletion syndrome (22q11DS)

Published:2021-11-16 Issue:1 Volume:13 Page:91-101
ISSN:1868-310X
Container-title:Journal of Community Genetics
language:en
Short-container-title:J Community Genet

Author:

Cook Courtney B.,Slomp Caitlin,Austin Jehannine^ORCID

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Public Health, Environmental and Occupational Health,Epidemiology

Link

https://link.springer.com/content/pdf/10.1007/s12687-021-00558-9.pdf

Reference51 articles.

1. Alugo T, Malone H, Sheehan A et al (2017) Development of a 22q11DS psycho-educational programme: exploration of the views, concerns and educational needs of parents caring for children or adolescents with 22q11DS in relation to mental health issues. Child Care Health Dev 43:527–535. https://doi.org/10.1111/cch.12457

2. Bassett AS, McDonald-McGinn DM, Devriendt K et al (2011) Practical guidelines for managing patients with 22q11.2 deletion syndrome. J Pediatr 159:332–339.e1. https://doi.org/10.1016/J.JPEDS.2011.02.039

3. Baughman ST, Morris E, Jensen K, Austin J (2015) Disclosure of psychiatric manifestations of 22q11.2 deletion syndrome in medical genetics: a 12-year retrospective chart review. Am J Med Genet Part A 167:2350–2356. https://doi.org/10.1002/ajmg.a.37190

4. Campbell IM, Sheppard SE, Crowley TB et al (2018) What is new with 22q? An update from the 22q and You Center at the Children’s Hospital of Philadelphia. Am J Med Genet Part A 176:2058–2069. https://doi.org/10.1002/ajmg.a.40637

5. Carrion P, Semaka A, Batallones R, et al (2021) Reflections of parents of children with 22q11.2 Deletion Syndrome on the experience of receiving psychiatric genetic counseling: ‘Awareness to Act.’ J Genet Couns jgc4.1460. https://doi.org/10.1002/jgc4.1460

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1. Mental health, coping, and protective factors in mothers of children with 22q11.2 deletion syndrome;American Journal of Medical Genetics Part B: Neuropsychiatric Genetics;2024-02-26

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