“I would like to discuss it further with an expert”: a focus group study of Finnish adults’ perspectives on genetic secondary findings
Author:
Funder
Suomen Akatemia
Publisher
Springer Science and Business Media LLC
Subject
Genetics (clinical),Public Health, Environmental and Occupational Health,Epidemiology
Link
http://link.springer.com/article/10.1007/s12687-018-0356-6/fulltext.html
Reference40 articles.
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2. Aktan-Collan K, Kääriäinen H, Järvinen H, Peltomäki P, Pylvänäinen K, Mecklin J-P, Haukkala A (2013) Psychosocial consequences of predictive genetic testing for lynch syndrome and associations to surveillance behaviour in a 7-year follow-up study. Familial Cancer 12:639–646
3. Aktan-Collan KI, Kääriäinen HA, Kolttola EM, Pylvänäinen K, Järvinen HJ, Haukkala AH, Mecklin J-P (2011) Sharing genetic risk with next generation: mutation-positive parents’ communication with their offspring in Lynch syndrome. Familial Cancer 10:43–50
4. Barbour R (2008) Doing focus groups. Sage, Newcastle
5. Bollinger JM, Scott J, Dvoskin R, Kaufman D (2012) Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study. Genet Med 14:451–457
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