Voice of a caregiver: call for action for multidisciplinary teams in the care for children with atypical hemolytic uremic syndrome
Author:
Publisher
Springer Science and Business Media LLC
Subject
Nephrology,Pediatrics, Perinatology and Child Health
Link
https://link.springer.com/content/pdf/10.1007/s00467-023-06158-8.pdf
Reference9 articles.
1. Woodward L, Burke L, Shah K (2022) aHUS diagnosis process: patients’ experience of specialist care and the diagnosis decision. aHUS Alliance Action. https://www.ahusallianceaction.org/wp-content/uploads/2022/02. Accessed 31 August 2023
2. Gordon CE, Chitalia VC, Sloan JM et al (2017) Thrombotic microangiopathy: a multidisciplinary team approach. Am J Kidney Dis 70:715–721. https://doi.org/10.1053/j.ajkd.2017.05.017
3. Ward AJ, Murphy D, Marron R et al (2022) Designing rare disease care pathways in the Republic of Ireland: a co-operative model. Orphanet J Rare Dis 17:162. https://doi.org/10.1186/s13023-022-02309-6
4. Epstein N (2014) Multidisciplinary in-hospital teams improve patient outcomes: a review. Surg Neurol Int 5:295. https://doi.org/10.4103/2152-7806.139612
5. Vaisbich MH, Satiro CAF, Roz D et al (2019) Multidisciplinary approach for patients with nephropathic cystinosis: model for care in a rare and chronic renal disease. J Bras Nefrol 41:131–141. https://doi.org/10.1590/2175-8239-JBN-2018-0139
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