Caregiver perspectives of dialysis initiation for children with kidney disease: a qualitative study
Author:
Funder
National Institutes of Health
Publisher
Springer Science and Business Media LLC
Subject
Nephrology,Pediatrics, Perinatology and Child Health
Link
https://link.springer.com/content/pdf/10.1007/s00467-022-05472-x.pdf
Reference49 articles.
1. Splinter A, Tjaden LA, Haverman L, Adams B et al (2018) Children on dialysis as well as renal transplanted children report severely impaired health-related quality of life. Qual Life Res 27:1445–1454
2. Tjaden LA, Grootenhuis MA, Noordzij M, Groothoff JW (2016) Health-related quality of life in patients with pediatric onset of end-stage renal disease: state of the art and recommendations for clinical practice. Pediatr Nephrol 31:1579–1591
3. Varni JW, Limbers CA, Burwinkle TM (2007) Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes 16:43–58
4. Selewski DT, Massengill SF, Troost JP, Wickman L et al (2014) Gaining the Patient Reported Outcomes Measurement Information System (PROMIS) perspective in chronic kidney disease: a Midwest Pediatric Nephrology Consortium study. Pediatr Nephrol 29:2347–2356
5. Wightman A (2020) Caregiver burden in pediatric dialysis. Pediatr Nephrol 35:1575–1583
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