Appropriateness of end-of-life care for children with genetic and congenital conditions: a cohort study using routinely collected linked data
Author:
Funder
Wetenschappelijk Fonds Willy Gepts
Fonds Wetenschappelijk Onderzoek
Publisher
Springer Science and Business Media LLC
Subject
Pediatrics, Perinatology and Child Health
Link
https://link.springer.com/content/pdf/10.1007/s00431-023-05030-z.pdf
Reference39 articles.
1. Feudtner C, Feinstein JA, Zhong W, Hall M, Dai D (2014) Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation. BMC Pediatr 14:1–7. https://doi.org/10.1186/1471-2431-14-199
2. Marcus KL, Kao PC, Ma C, Wolfe J, DeCourcey DD (2022) Symptoms and suffering at end of life for children with complex chronic conditions. J Pain Symptom Manage 63:88–97. https://doi.org/10.1016/j.jpainsymman.2021.07.010
3. Keefer P, Lehmann K, Shanley M, Woloszyk T, Khang E, Luckritz K, Saul DA (2017) Single-center experience providing palliative care to pediatric patients with end-stage renal disease. J Palliat Med 20:845–849. https://doi.org/10.1089/jpm.2016.0353
4. Kaufman BD, Cohen HJ (2019) Palliative care in pediatric heart failure and transplantation. Curr Opin Pediatr 31:611–616. https://doi.org/10.1097/MOP.0000000000000799
5. Robinson WM (2009) Palliative and end-of-life care in cystic fibrosis: what we know and what we need to know. Curr Opin Pulm Med 15:621–625. https://doi.org/10.1097/MCP.0b013e3283304c29
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