The ethical framework for performing research with rare inherited neurometabolic disease patients

Author:

Giannuzzi VivianaORCID,Devlieger Hugo,Margari Lucia,Odlind Viveca Lena,Ragab Lamis,Bellettato Cinzia Maria,D’Avanzo Francesca,Lampe Christina,Cassis Linda,Cortès-Saladelafont Elisenda,Cazorla Ángels Garcia,Barić Ivo,Cvitanović-Šojat Ljerka,Fumić Ksenija,Dali Christine I,Bartoloni Franco,Bonifazi Fedele,Scarpa Maurizio,Ceci Adriana

Funder

Consumers, Health and Food Executive Agency

Publisher

Springer Science and Business Media LLC

Subject

Pediatrics, Perinatology, and Child Health

Cited by 13 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Treatment of congenital disorders of glycosylation: An overview;Molecular Genetics and Metabolism;2024-09

2. Insights into neurometabolic diseases;AIMS Molecular Science;2024

3. Qualified placebo for trials of herbal medicine treatment in rare diseases? A cross-sectional analysis;Orphanet Journal of Rare Diseases;2023-11-30

4. PedCRIN tool for the biosamples management in pediatric clinical trials;Clinical and Translational Science;2023-02-19

5. Ethical Considerations Within the ESPGHAN Community;Journal of Pediatric Gastroenterology & Nutrition;2022-12-23

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