Author:
Forsythe Laura P.,Szydlowski Victoria,Murad Mohammad Hassan,Ip Stanley,Wang Zhen,Elraiyah Tarig A.,Fleurence Rachael,Hickam David H.
Publisher
Springer Science and Business Media LLC
Reference61 articles.
1. Andersen T. The political empowerment of rare disease patient advocates both at EU and national level. Orphanet Journal Of Rare Diseases. 2012;7(2):A33.
2. European Organization for Rare Diseases (EURORDIS). Patients’ priorities and needs for rare disease research 2014-2020. Available at: http://www.eurordis.org/sites/default/files/publications/what_how%20_are_disease_research_0.pdf Accessed April 30, 2014.
3. Forsythe LP, Frank L, Walker KO, Hayes D, Levine S, Anise A, et al., editors. Patient and Clinician Views on Comparative Effectiveness Research and Engagement in Research: A Panel Discussion on PCORI Survey Results. AcademyHealth Annual Research Meeting; 2013 June 2013; Baltimore, MD.
4. Landy DC, Brinich MA, Colten ME, Horn EJ, Terry SF, Sharp RR. How disease advocacy organizations participate in clinical research: a survey of genetic organizations. Genet Med. 2012;14(2):223–228. doi: 10.1038/gim.0b013e3182310ba0 .
5. Concannon TW, Meissner P, Grunbaum JA, McElwee N, Guise JM, Santa J, et al. A new taxonomy for stakeholder engagement in patient-centered outcomes research. J Gen Intern Med. 2012;27(8):985–991.
Cited by
109 articles.
订阅此论文施引文献
订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献