Consent and Autonomy in the Genomics Era
Author:
Funder
Wellcome Trust
Publisher
Springer Science and Business Media LLC
Subject
General Medicine
Link
http://link.springer.com/content/pdf/10.1007/s40142-019-00164-9.pdf
Reference44 articles.
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2. •• Marcon AR, Bieber M, Caulfield T. Representing a “revolution”: how the popular press has portrayed personalized medicine. Genet Med. 2018;20:950–6. This article describes the strongly optimistic discourse around ‘personalised’ and ‘precision medicine’ in news publications, reminding us that consent conversations may take place in a context of high expectation as to what genomic tests might deliver.
3. Huang S. The tension between big data and theory in the “omics” era of biomedical research. Perspect Biol Med. 2018;61(4):472–88.
4. • Weiss KM. Genetic pointillism versus physiological form. Perspect Biol Med. 2018;61(4):503–16 This article emphasises the limits of our ability to interpret genomic data, focussing on the complexity and uncertainty of interpretation and the problems with attempting to consider the effects of genomic variants separately in an additive fashion.
5. Horton R, Lucassen A, Fenwick A. Unpacking the concept of a genomic result. Am J Bioeth. 2019;19(1):70–1.
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