Care4Parents: An Evaluation of an Online Mindful Parenting Program for Caregivers of Children with 22q11.2 Deletion Syndrome

Abstract

Abstract Objectives Parenting a child with special healthcare needs is associated with significant caregiver stress. Previous research has found that parenting stress and mental health impact outcomes for children with chronic illnesses. Despite this, the importance of managing parents’ stress is often overlooked in the management of chronic health conditions, such as 22q11.2 deletion syndrome (22q11DS). The objective of this study was to investigate the acceptability of the mindful parenting program, Care4Parents. Methods This study was designed as a non-randomised pilot study evaluating the acceptability of an online mindful parenting program Care4Parents, specifically designed for those parenting a child with special health care needs, including medical complexity. There were 20 participants recruited to take part, which involved attending eight online weekly group sessions for 2 h, with a follow-up after 2 months and practice exercises between sessions. Interviews were conducted with 12 participants after the completion of the program. Using attendance data and thematic analysis of semi-structured interviews, the study aimed to determine if the online program Care4Parents would be experienced by participants as acceptable. Results Results indicate preliminary evidence of acceptability, with adequate retention and themes emerging from interviews highlighting the appropriateness of content, delivery, and perceived benefits, including personal growth, peer support, and enhanced coping. ‘Barriers to engagement’ was also a theme, and adjustments were discussed based on participant feedback to further enhance the program. Conclusions The analysis of the data indicates that the program was deemed acceptable to participants, therefore warranting further research using quantitative measures to confirm findings and investigate effectiveness.