Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung
Author:
Publisher
Springer Science and Business Media LLC
Link
https://link.springer.com/content/pdf/10.1007/s00108-023-01496-z.pdf
Reference20 articles.
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2. Barlow JH, Ellard DR (2006) The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base. Child Care Health Dev 32:19–31
3. Eurodis (2005) Rare diseases: understanding this public health priority
4. Eurodis (2009) The voice of 12,000 patients. Experiences and expectations of rare disease patients on diagnosis and care in Europe. EURODIS, Boulogne-Billancourt
5. Europäisches Parlament Und Der Rat Der Europäischen Union (2000) Verordnung
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