Evaluating the utilization of educational materials in communicating about Lynch syndrome to at-risk relatives

Author:

Dilzell Kristen,Kingham Kerry,Ormond Kelly,Ladabaum Uri

Publisher

Springer Science and Business Media LLC

Subject

Cancer Research,Genetics (clinical),Oncology,Genetics

Reference28 articles.

1. Referenced with permission from the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) for Genetic/Familial High-Risk Assessment: Colorectal V.1.2014. © National Comprehensive Cancer Network, Inc 2014.  All rights reserved.  Accessed 22 April 2014.  (To view the most recent and complete version of the guideline, go online to www.nccn.org .  NATIONAL COMPREHENSIVE CANCER NETWORK®, NCCN®, NCCN GUIDELINES®, and all other NCCN Content are trademarks owned by the National Comprehensive Cancer Network, Inc)

2. Terdiman JP (2005) It is time to get serious about diagnosing Lynch syndrome (hereditary nonpolyposis colorectal cancer with defective DNA mismatch repair) in the general population. Gastroenterology 129(2):741–744. doi: 10.1016/j.gastro.2005.06.033

3. Recommendations from the EGAPP Working Group (2009) Genetic testing strategies in newly diagnosed individuals with colorectal cancer aimed at reducing morbidity and mortality from Lynch syndrome in relatives. Genet Med 11(1):35–41. doi: 10.1097/GIM.0b013e31818fa2ff

4. Ladabaum U, Wang G, Terdiman J, Blanco A, Kuppermann M, Boland CR et al (2011) Strategies to identify the Lynch syndrome among patients with colorectal cancer: a cost-effectiveness analysis. Ann Intern Med 155(2):69–79. doi: 10.1059/0003-4819-155-2-201107190-00002

5. Offit K, Groeger E, Turner S, Wadsworth EA, Weiser MA (2004) The “duty to warn” a patient’s family members about hereditary disease risks. JAMA 292(12):1469–1473. doi: 10.1001/jama.292.12.1469

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