Disclosure of genetic risk to dating partners among young adults with von Hippel-Lindau disease
Author:
Funder
Horace H. Rackham School of Graduate Studies, University of Michigan
National Society of Genetic Counselors
Publisher
Springer Science and Business Media LLC
Subject
Cancer Research,Genetics (clinical),Oncology,Genetics
Link
https://link.springer.com/content/pdf/10.1007/s10689-022-00311-2.pdf
Reference19 articles.
1. Maher ER, Yates JR, Harries R, Benjamin C, Harris R, Moore AT, Ferguson-Smith MA (1990) Clinical features and natural history of von Hippel-Lindau disease. Q J Med 77(283):1151–1163. https://doi.org/10.1093/qjmed/77.2.1151
2. Varshey N, Kebede AA, Owusu-Dapaah H, Lather J, Kaushik M, Bhullar JS (2017) A review of Von Hippel-Lindau syndrome. J Kidney Cancer VHL 4(3):20–29. https://doi.org/10.15586/jkcvhl.2017.88
3. Jonasch E, Donskov F, Iliopoulos O, Rathmell K, Narayan VK, Maughan BL, Oudard S, Else T, Maranchie JK, Welsh SJ, Thamake S, Park EK, Perini RF, Marston Linehan W, Srinivasan R (2021) Belzutifan for renal cell carcinoma in von Hippel-Lindau disease. N Engl J Med 385:2036–2046. https://doi.org/10.1056/NEJMoa2103425
4. Kasparian NA, Rutstein A, Sansom-Daly U, Mireskandari S, Tyler J, Duffy J, Tucker KM (2015) Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by von Hippel-Lindau disease. Eur J Hum Genet 23(1):34–40. https://doi.org/10.1038/ejhg.2014.44
5. Forbes Shepherd R, Lewis A, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE (2018) A systematic review of how young people live with inherited disease: what can we learn for Li-Fraumeni syndrome? J Adolesc Young Adult Oncol 7(5):525–545. https://doi.org/10.1089/jayao.2018.0028
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