Parent and Provider Differences in Ratings of Mental Health and Neurodevelopmental Concerns in Children with Neurologic Disorders
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Published:2024-02-24
Issue:3
Volume:31
Page:526-536
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ISSN:1068-9583
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Container-title:Journal of Clinical Psychology in Medical Settings
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language:en
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Short-container-title:J Clin Psychol Med Settings
Author:
Schwartzman Jessica M.ORCID, Williams Zachary J.ORCID, Molnar Andrew E.ORCID
Abstract
AbstractChildren with neurologic disorders face increased risks for mental health and neurodevelopmental conditions, with information often limited to parent report. To better understand mental health and neurodevelopmental needs in this population, a retrospective chart review of a convenience sample of children with neurologic disorders referred for a neuropsychological evaluation was conducted in the present study to explore interrater agreement between care team members (referring providers, parents, pediatric neuropsychologist). Qualitative and quantitative data were collected from the evaluation reports of 129 youth (9:0–17:11 years old; 51.2% of female sex) with neurologic disorders (i.e., 38.0% traumatic brain injury, 27.1% epilepsy, 14.7% premature birth, 7.8% pediatric cancer, 3.9% prenatal substance exposure, and 14.7% other) who completed an evaluation in 2019. Over half the youth were flagged for unmet neurodevelopmental and mental health concerns and analyses revealed low interrater agreement for mental health concerns (κ = .324), better agreement for neurodevelopmental concerns (κ = .511), and low sensitivity of referring providers (Se = .326) and parents (Se = .366). One-way analyses of variance uncovered important factors (e.g., symptom severity, adaptive skills) that may account for missed concerns. Findings guide recommendations to strengthen methods for understanding mental health and/or neurodevelopmental concerns in children with neurologic disorders.
Funder
National Center for Advancing Translational Sciences National Institute on Deafness and Other Communication Disorders National Institute of General Medical Sciences University of Southern California
Publisher
Springer Science and Business Media LLC
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