User-centered design and enhancement of an electronic personal health record to support survivors of pediatric cancers

Author:

Marchak Jordan GillelandORCID,Cherven Brooke,Williamson Lewis Rebecca,Edwards Paula,Meacham Lillian R.,Palgon Michael,Escoffery Cam,Mertens Ann C.

Funder

National Cancer Institute of the National Institutes of Health

Agency for Healthcare Research and Quality

Lance Armstrong Foundation

CURE Childhood Cancer, Inc.

Publisher

Springer Science and Business Media LLC

Subject

Oncology

Reference43 articles.

1. SEER Cancer Statistics Review, 1975-2015. https://seer.cancer.gov/csr/1975_2015/ [database on the Internet]. National Cancer Institute, based on November 2017 SEER data submission, posted to the SEER web site, April 2018.

2. Hudson MM, Ness KK, Gurney JG, Mulrooney DA, Chemaitilly W, Krull KR, Green DM, Armstrong GT, Nottage KA, Jones KE, Sklar CA, Srivastava DK, Robison LL (2013) Clinical ascertainment of health outcomes among adults treated for childhood cancer. Jama. 309(22):2371–2381. https://doi.org/10.1001/jama.2013.6296

3. Landier W, Bhatia S, Eshelman DA, Forte KJ, Sweeney T, Hester AL, Darling J, Armstrong FD, Blatt J, Constine LS, Freeman CR, Friedman DL, Green DM, Marina N, Meadows AT, Neglia JP, Oeffinger KC, Robison LL, Ruccione KS, Sklar CA, Hudson MM (2004) Development of risk-based guidelines for pediatric cancer survivors: the Children’s Oncology Group Long-Term Follow-Up Guidelines from the Children’s Oncology Group Late Effects Committee and Nursing Discipline. J Clin Oncol 22(24):4979–4990. https://doi.org/10.1200/JCO.2004.11.032

4. Meacham LR, Edwards PJ, Cherven BO, Palgon M, Espinoza S, Hassen-Schilling L, Mertens AC (2012) Primary care providers as partners in long-term follow-up of pediatric cancer survivors. J Cancer Surviv 6(3):270–277. https://doi.org/10.1007/s11764-012-0224-z

5. Nathan PC, Hayes-Lattin B, Sisler JJ, Hudson MM (2011) Critical issues in transition and survivorship for adolescents and young adults with cancers. Cancer. 117(10 Suppl):2335–2341. https://doi.org/10.1002/cncr.26042

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