Author:
Castro Raquel,Senecat Juliette,de Chalendar Myriam,Vajda Ildikó,van Breukelen Silvia,Montefusco Maria,Nielsen Stephanie Jøker,Dan Dorica
Publisher
Springer International Publishing
Reference34 articles.
1. Aronson, J. K. (2006). Rare diseases and orphan drugs. British Journal of Clinical Pharmacology, 61(3), 243–245. doi:
10.1111/j.1365-2125.2006.02617.x
. Accessed October 7, 2015, from
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1885017/
2. Brains for Brain Foundation. (2014). Dr Horst Schmidt Klinik. Healthcare transition of adolescent rare disease patients (Position Paper 2014). Accessed September 18, 2015, from
http://www.innermed.eu/uploads/assets/6_BfB_Transition_Paper_Final_03022015.pdf
3. Byskov Holm, B., & Jensen, L. (2014). Only the strong survive—Said by a mother navigating the welfare systems. Rare Diseases Denmark. Accessed September 18, 2015, from
http://www.rare-diseases.eu/wp-content/uploads/2013/08/12_t1.pdf
4. de Chalendar, M., Bee, S., Olry, A., & Rath, A. (2014). Appraisal of disability in rare diseases with the ICF-CY: The Orphanet disability project. Archives of Disease in Childhood 99(Suppl 2), A14–A15.
5. Conway, S. et al. (2014). European cystic fibrosis society standards of care: Framework for the cystic fibrosis centre. Journal of Cystic Fibrosis, 13(1):3–22. doi:
10.1016/j.jcf.2014.03.009
. Accessed September 22, 2015, from
http://www.cysticfibrosisjournal.com/article/S1569-1993%2814%2900084-8/pdf
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