Author:
Jansen Paula,van den Berg Linda,van Overveld Petra,Boiten Jan-Willem
Abstract
AbstractResearch data stewardship refers to the long-term and sustainable care for research data, from study design to data collection, analysis, storage, and sharing. It involves all activities that are required to ensure that digital research data is findable, accessible, interoperable, and reusable (FAIR) in the long term, including data management, archiving, and reuse by third parties. This chapter provides an overview of the aspects of FAIR data stewardship that you should consider when you are involved in clinical research.
Publisher
Springer International Publishing
Reference5 articles.
1. Wilkinson MD, Dumontier M, Aalbersberg IJ, Appleton G, Axton M, Baak A, et al. The FAIR guiding principles for scientific data management and stewardship. Sci Data. 2016;3:160018. https://doi.org/10.1038/sdata.2016.18.
2. Wilkinson MD, Sansone S, Schultes E, Doorn P, Bonino da Silva Santos LO, Dumontier M. A design framework and exemplar metrics for FAIRness. Sci Data. 2018;5:180118. https://doi.org/10.1038/sdata.2018.118.
3. Boeckhout M, Reuzel R, Zielhuis G. The donor as partner – How to involve patients and the public in the governance of biobanks and registries. Leiden: BBMRI-NL; 2014.
4. Australian National Data Service. Guide on metadata. 2016.
5. UK Data Service. Document your data.
Cited by
15 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献