1. Clinical trials transformation initiative recommendations: effective engagement with patient groups around clinical trials. www.ctti-clinicaltrials.org
2. Elf M, Flink M, Nilsson M, Tistad M, von Koch L, Ytterberg C (2017) The case of value-based healthcare for people living with complex long-term conditions. BMC Health Serv Res 17(1):24.
https://doi.org/10.1186/s12913-016-1957-6
3. Kenney J (2016) Value-based care must be linked to improved clinical outcomes. Am Health Drug Benefits 9(Spec Issue):22
4. Moloney C (2016) Meeting the challenges of rare disease treatment adherence. Pharmaforum. http://pharmaphorum.com/views-and-analysis/meeting-challenges-rare-disease-treatment-adherence/, August 9
5. Patient Groups & Clinical Trials project. https://www.ctti-clinicaltrials.org/briefing-room/recommendations/ctti-recommendations-effective-engagement-patient-groups-around, October 2015