Ethics and Citizen Participation in the uBiome Institutional Review Board Debate: Some Reflections on Social and Normative Analyses

Author:

Del Savio Lorenzo

Publisher

Springer International Publishing

Reference23 articles.

1. Cooper, M. 2008. Life as Surplus: Biotechnology & Capitalism in the Neoliberal Era. Seattle: University of Washington Press.

2. Del Savio, L., A. Buyx, and B. Prainsack. 2016. Crowdsourcing the Human Gut: Is Crowdsourcing Also Citizen Science? Journal of Science Communication 15 (03): A03.

3. Dockser Marcus, A. 2014. The Ethics of Experimenting on Yourself. Wall Street Journal, October 24. Available at: http://www.wsj.com/articles/the-ethics-of-experimenting-on-yourself-1414170041 . Accessed 24 Aug 2016.

4. Emanuel, E.J., D. Wendler, and C. Grady. 2000. What Makes Clinical Research Ethical? JAMA 283 (20): 2701–2711.

5. European Group on Ethics in Science and New Technologies. 2015. Opinion on the Ethical Implications of New Health Technologies and Citizen Participation. https://ec.europa.eu/research/ege/pdf/opinion-29_ege_executive-summary-recommendations.pdf . Accessed 24 Aug 2016.

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