Utilizing open-source platforms to build and deploy interactive patient-reported quality of life tracking tools for monitoring protocol adherence

Author:

Golafshar Michael A.ORCID,Petersen Molly,Vargas Carlos E.,Samadder N. Jewel,Kunze Katie L.,McCormick Nicole,Watkin Shelby A.,Maleyeva Diana,Cheng Tiffany W.,Vargas Manuel,DeWees Todd A.

Publisher

Springer Science and Business Media LLC

Subject

Public Health, Environmental and Occupational Health

Reference16 articles.

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2. Smith, A. W., Mitchell, S. A., De Aguiar, C. K., Moy, C., Riley, W. T., Wagster, M. V., et al. (2016). News from the NIH: Person-centered outcomes measurement: NIH-supported measurement systems to evaluate self-assessed health, functional performance, and symptomatic toxicity. Translational Behavioral Medicine, 6(3), 470–474. https://doi.org/10.1007/s13142-015-0345-9.

3. Bottomley, A., Pe, M., Sloan, J., Basch, E., Bonnetain, F., Calvert, M., et al. (2016). Analysing data from patient-reported outcome and quality of life endpoints for cancer clinical trials: A start in setting international standards. The Lancet Oncology, 17(11), e510–e514. https://doi.org/10.1016/S1470-2045(16)30510-1.

4. Mercieca-Bebber, R., Palmer, M. J., Brundage, M., Calvert, M., Stockler, M. R., & King, M. T. (2016). Design, implementation and reporting strategies to reduce the instance and impact of missing patient-reported outcome (PRO) data: A systematic review. British Medical Journal Open, 6(6), e010938. https://doi.org/10.1136/bmjopen-2015-010938.

5. May, M. (2019). Twenty-five ways clinical trials have changed in the last 25 years. Exploring the evolution, from analysis and endpoints to registration and regulations. Nature Medicine, 25(1), 2–5. https://doi.org/10.1038/s41591-018-0314-1.

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