A framework for best practices in clinical outcome assessment (COA) concept mapping: a case study

Author:

O’Connor MeaghanORCID,Broderick LynneORCID,Lauher-Charest MirandaORCID,Waldman Laura TeslerORCID,Jackson KristiORCID,Kosinski MarkORCID,Carty MichelleORCID

Publisher

Springer Science and Business Media LLC

Reference17 articles.

1. Anderson, J., Levy, D. S., Lumry, W., Koochaki, P., Lanar, S., & Henry Li, H. (2021). Letting the patients speak: An in-depth, qualitative research-based investigation of factors relevant to health-related quality of life in real-world patients with hereditary angioedema using subcutaneous C1 inhibitor replacement therapy. Allergy Asthma Clin Immunol, 17, 60. https://doi.org/10.1186/s13223-021-00550-5

2. Andresen, E. M., Fried-Oken, M., Peters, B., & Patrick, D. L. (2016). Initial constructs for patient-centered outcome measures to evaluate brain-computer interfaces. Disability and Rehabilitation. Assistive Technology, 11, 548–557. https://doi.org/10.3109/17483107.2015.1027298

3. Crudgington, H., Collingwood, A., Bray, L., Lyle, S., Martin, R., Gringras, P., et al. (2020). Mapping epilepsy-specific patient-reported outcome measures for children to a proposed core outcome set for childhood epilepsy. Epilepsy & Behavior, 112, 107372. https://doi.org/10.1016/j.yebeh.2020.107372

4. De Oliveira Faria, S., Hurwitz, G., Kim, J., Liberty, J., Orchard, K., Liu, G. (2021). Identifying Patient-Reported Outcome Measures (PROMs) for Routine Surveillance of Physical and Emotional Symptoms in Head and Neck Cancer Populations: A Systematic Review. JCM ;10:4162. https://doi.org/10.3390/jcm10184162

5. Kuspinar, A., & Mayo, N. E. (2013). Do generic utility measures capture what is important to the quality of life of people with multiple sclerosis? Health and Quality of Life Outcomes, 11, 71. https://doi.org/10.1186/1477-7525-11-71

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