Abstract
Abstract
Purpose
The purpose of this study was to evaluate whether an educational palliative care intervention improved the quality of life for next of kin to older persons in nursing homes.
Methods
Altogether, 90 next of kin in the intervention group and 105 next of kin in the control group were included. Data were collected using the WHOQOL-BREF questionnaire, answered before and 3 months after the intervention was completed. Descriptive and comparative analyses were performed.
Results
This study found a statistically significant increase in the Physical health subscale in the intervention group but not in the control group. In contrast, the General health score decreased in the control group but not in the implementation group. Furthermore, we found an increase in the item able to perform activities of daily living in the intervention group and a decrease in the item energy and fatigue in the control group.
Conclusion
The results indicated small statistical changes regarding next of kins’ QoL in favour of the intervention. Lessons learned from the study for future research are to include next of kin as participants at meetings about next of kin and to include more meetings about the theme next of kin. Both approaches would bring a stronger focus on the family-centred care aspect of the intervention into the education component, which this study indicates the need for.
Trial registry
Trial registration NCT02708498. Date of registration 26 February 2016.
Funder
Vetenskapsrådet
Vårdalstiftelsen
Medicinska Fakulteten, Lunds Universitet
Publisher
Springer Science and Business Media LLC
Subject
Public Health, Environmental and Occupational Health
Reference36 articles.
1. Hall, S., Petkova, H., Tsouros, A., Constantini, M., & Higginson I. (2011). Palliative care for older people: Better practices. Copenhagen: WHO Regional Office for Europe. Accessed January 30, 2019, from http://www.euro.who.int/__data/assets/pdf_file/0017/143153/e95052.pdf.
2. Sawatzky, R., Porterfield, P., Lee, J., Dixon, D., Lounsbury, K., Pesut, B., et al. (2016). Conceptual foundations of a palliative approach: A knowledge synthesis. BMC Palliative Care. https://doi.org/10.1186/s12904-016-0076-9.
3. Connor, S. R., Sepulveda, & Bermedo, M. C. (2014). Global atlas of palliative care at the end of life. In: World Palliative Care Alliance. WHO. Accessed January 30, 2019, from http://www.who.int/nmh/Global_Atlas_of_Palliative_Care.pdf.
4. Edvardsson, D., Fetherstonhaugh, D., & Nay, R. (2010). Promoting a continuation of self and normality: Person-centred care as described by people with dementia, their family members and aged care staff. Journal of Clinical Nursing. https://doi.org/10.1111/j.1365-2702.2009.03143.x.
5. Wallerstedt, B., Behm, L., Alftberg, Å., Sandgren, A., Benzein, E., Nilsen, P., et al. (2018). Striking a balance: A qualitative study of next of kin participation in the care of older persons in nursing homes in Sweden. Healthcare. https://doi.org/10.3390/healthcare6020046.
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