Improving the quality of life of parents of patients with congenital abnormalities using psychoeducational interventions: a systematic review
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Published:2023-06-17
Issue:11
Volume:32
Page:3027-3037
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ISSN:0962-9343
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Container-title:Quality of Life Research
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language:en
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Short-container-title:Qual Life Res
Author:
Rodrigues Marisa GarciaORCID, Rodrigues José DanielORCID, Soares Matilde MonteiroORCID, Azevedo Luís FilipeORCID, Rodrigues Pedro PereiraORCID, Areias José CarlosORCID, Areias Maria EmíliaORCID
Abstract
Abstract
Purpose
To identify psychoeducational interventions that target parents of children with congenital abnormalities (CA) and evaluate their impact on quality of life (QoL).
Methods
The search was conducted in six electronic databases, complemented by references of the studies found, studies of evidence synthesis, a manual search of relevant scientific meetings’ abstracts and contact with experts. We included primary studies on parents of children with CA that studied psychoeducational interventions versus standard care. We assessed the risk of bias using Cochrane Collaboration’s tool.
Results
We included six studies focusing on congenital heart defects (CHD). They described four different psychoeducational strategies. In four studies, statistically significant differences were found. For clinical practice, we considered three interventions as more feasible: the Educational program for mothers, with a group format of four sessions weekly; CHIP-Family intervention, which includes a parental group workshop followed by an individual follow-up booster session; and WeChat educational health program with an online format.
Conclusions
This review is the first that assesses the impact of psychoeducational interventions targeted at parents of children with CA on their QoL. The best approach to intervention is multiple group sessions. Two essential strategies were to give support material, enabling parents to review, and the possibility of an online program application, increasing accessibility. However, because all included studies focus on CHD, generalizations should be made carefully. These findings are crucial to guide future research to promote and improve comprehensive and structured support for families and integrate them into daily practice.
Funder
Universidade do Porto
Publisher
Springer Science and Business Media LLC
Subject
Public Health, Environmental and Occupational Health
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