Patient engagement in quality of life research
Author:
Funder
The University of Queensland
Publisher
Springer Science and Business Media LLC
Link
https://link.springer.com/content/pdf/10.1007/s11136-024-03727-8.pdf
Reference5 articles.
1. Haywood, K., Brett, J., Salek, S., Marlett, N., Penman, C., Shklarov, S., Norris, C., Santana, M. J., & Staniszewska, S. (2015). Patient and public engagement in health-related quality of life and patient-reported outcomes research: What is important and why should we care? Findings from the first ISOQOL patient engagement symposium. Quality of Life Research, 24, 1069–1076.
2. Greenhalgh, T., Hinton, L., Finlay, T., Macfarlane, A., Fahy, N., Clyde, B., & Chant, A. (2019). Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot. Health Expectations, 22(4), 785–801.
3. Frank, L., Morton, S. C., Guise, J. M., Jull, J., Concannon, T. W., & Tugwell, P. (2020). Engaging patients and other non-researchers in health research: Defining research engagement. Journal of General Internal Medicine, 35, 307–314.
4. Largent, E. A., Lynch, H. F., & McCoy, M. S. (2018). Patient-engaged research: Choosing the “right” patients to avoid pitfalls. Hastings Center Report, 48(5), 26–34.
5. Calvert, M. J., Cruz Rivera, S., Retzer, A., Hughes, S. E., Campbell, L., Molony-Oates, B., Aiyegbusi, O. L., Stover, A. M., Wilson, R., McMullan, C., & Anderson, N. E. (2022). Patient reported outcome assessment must be inclusive and equitable. Nature medicine, 28(6), 1120–1124.
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