1. Sackley, C., Hoppitt, T., Calvert, M., Pall, H., Gill, P., Yao, G. et al. (2011). Review of epidemiology and service use in rare long-term neurological conditions (RESULT). Department of Health. http://www.ltnc.org.uk/download_files/final%20reports/Oct_11/RESULT_Final_Report.pdf . Accessed 17 Sept 2012.
2. Department of Health (2005). The National Service Framework for long term conditions. http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4105369.pdf . Accessed 17 Sept 2012.
3. Neurological Alliance response to health white paper, Equity and Excellence: Liberating the NHS. Oct 2010. http://www.mstrust.org.uk/professionals/downloads/neurological_allaince_response_to_equity_excellence.pdf . Accessed 20 Mar 2012.
4. Department of Health Report by the Comptroller and Auditor General. HC1586, Session 2010-2012 (2011). Services for people with neurological conditions. 16th December 2011. The Stationery Office. http://www.official-documents.gov.uk/document/hc1012/hc15/1586/1586.pdf . Accessed 17 Sept 2012.
5. Aubeeluck, A., Buchanan, H., Stupple, E. ‘All the burden on all the carers’: Exploring quality of life with family care givers of Huntington’s disease patients. Quality of Life Research. November 2011 Epub ahead of print.