Hypocrisy Around Medical Patient Data: Issues of Access for Biomedical Research, Data Quality, Usefulness for the Purpose and Omics Data as Game Changer
Author:
Publisher
Springer Science and Business Media LLC
Subject
Health Policy,Philosophy,Health (social science)
Link
http://link.springer.com/content/pdf/10.1007/s41649-019-00085-3.pdf
Reference40 articles.
1. Barrett, Tanya, Stephen E. Wilhite, Pierre Ledoux, Carlos Evangelista, Irene F. Kim, Maxim Tomashevsky, Kimberly A. Marshall, Katherine H. Phillippy, Patti M. Sherman, Michelle Holko, Andrey Yefanov, Hyeseung Lee, Naigong Zhang, Cynthia L. Robertson, Nadezhda Serova, Sean Davis, and Alexandra Soboleva. 2013. NCBI GEO: Archive for functional genomics data sets--update. Nucleic Acids Research 41 (D1): D991–D995. https://doi.org/10.1093/nar/gks1193 .
2. Beaulieu-Jones, Brett K., Daniel R. Lavage, John W. Snyder, Jason H. Moore, Sarah A. Pendergrass, and Christopher R. Bauer. 2018. Characterizing and managing missing structured data in electronic health records: Data analysis. JMIR Medical Informatics 6 (1): e11. https://doi.org/10.2196/medinform.8960 .
3. Brenner, Steven E. 2013. Be prepared for the big genome leak. Nature 498 (7453): 139. https://doi.org/10.1038/498139a .
4. Brull, Richard, Colin J.L. McCartney, Vincent W.S. Chan, Frances Chung, and Regan Rawson. 2004. Are patients comfortable consenting to clinical anesthesia research trials on the day of surgery? Anesthesia and Analgesia 98 (4): 1106–1110. https://doi.org/10.1213/01.ANE.0000106801.98537.25 .
5. Chen, Sunny, William A. Banks, Meera Sheffrin, William Bryson, Marissa Black, and Stephen M. Thielke. 2018. Identifying and categorizing spurious weight data in electronic medical records. The American Journal of Clinical Nutrition 107 (3): 420–426. https://doi.org/10.1093/ajcn/nqx056 .
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