Optimizing Engagement of the Latino Community in Cancer Research

Abstract

AbstractTo optimize engagement of Latino communities in cancer research, University of Southern California researchers are working with communities on prevention of cervical cancer, a highly preventable and treatable disease. Two recent studies from their signature initiatives, Es Tiempo and Tamale Lesson, are presented to illustrate the situation in the Latino community regarding the human papillomavirus (HPV) vaccination and cervical cancer screening. These population-based studies included promotores de salud (lay community health workers) and community members who were engaged from conceptualization, recruitment, translation, cultural adaptation, information dissemination, and other important aspects of the research. A third exploratory effort used virtual reality as a research tool to better understand vaccine hesitancy, especially among boys and explored end-of-life quality improvements for immigrant Latino populations. These studies serve as a backdrop for discussing common strategies to increase participation in cancer research in key areas such as information delivery, consultation with stakeholders and partners, and collaboration with community opinion leaders. Strategies are discussed, which optimize engagement in cancer research, stimulate communication, and empower participants to engage in research. These strategies shape attitudes, beliefs, and behaviors, improving outcomes for Latinas at risk of cervical and other HPV-related cancers.