Rare is frequent and frequent is costly: rare diseases as a challenge for health care systems

Author:

Graf von der Schulenburg J.-Matthias,Frank Martin

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Economics, Econometrics and Finance (miscellaneous)

Reference25 articles.

1. Orphanet: about rare diseases. http://www.orpha.net/consor/cgi-bin/Education_AboutRareDiseases.php?lng=EN (2014). Accessed 2 May 2014

2. Regulation (EC) No 141/2000 of the European Parliament and of the Council of 16 December 1999 on orphan medicinal products. http://ec.europa.eu/health/files/eudralex/vol-1/reg_2000_141_cons-2009-07/reg_2000_141_cons-2009-07_en.pdf (2009). Accessed 2 May 2014

3. Orphanet: What is an orphan drug? http://www.orpha.net/consor/cgi-bin/Education_AboutOrphanDrugs.php?lng=EN&stapage=ST_EDUCATION_EDUCATION_ABOUTORPHANDRUGS (2014). Accessed 2 May 2014

4. Kaplan, W., Wirtz, V., Mantel-Teeuwisse, A., Stolk, P., Duthey, B., Laing, R.: Priority medicines for Europe and the World 2013 update. World Health Organization, Department of Essential Drugs and Medicines Policy. http://ec.europa.eu/enterprise/sectors/healthcare/files/docs/prioritymedicines_report_en.pdf (2013). Accessed 2 May 2014

5. Eidt, D., Frank, M., Reimann, A., Wagner, T.O.F., Mittendorf, T., Schulenburg, J.-M.: Maßnahmen zur Verbesserung der gesundheitlichen Situation von Menschen mit Seltenen Erkrankungen in Deutschland. A study for the German Federal Ministry of Health. http://www.gesundheitsforschung-bmbf.de/_media/Autorentexte_Massnahmen-seltene-Krankheiten_200908.pdf (2009). Accessed 2 May 2014

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