Author:
Rios-Vega Lady,Carroll Amy,Dumont Rachel,Treadwell-Deering Diane,Fields Matthew,Schaaf Roseann
Abstract
Abstract
Purpose
Many autistic individuals experience sensory features that impact participation in healthcare. In this study, we aimed to identify the needs of autistic children during healthcare participation and, based on the findings, generate solutions to improve participation in healthcare.
Methods
A design-thinking approach with qualitative methods was used. First, observation of the environment and journey mapping were completed as part of the empathy stage of design thinking. Next, six parents of autistic children completed semi-structured interviews. The interviews were transcribed, and thematic analysis was used to identify themes. Next, healthcare providers participated in a group session to discuss experiences caring for autistic children. These data were also analyzed using qualitative methods, and themes emerged. Finally, healthcare providers and five interior design and architecture professionals reviewed the themes from both groups and the best available literature. They participated in a brainstorming session where solutions were collaboratively generated.
Results
Four main themes emerged from the parent's interviews, and three themes emerged from the healthcare provider’s input. Several solutions were identified during the brainstorming session, including a prototype for a sensory adaptive environment, sensory adaptations during medical procedures, and training for providers on sensory features in autism.
Conclusion
The design thinking method was appropriate to identify the problem and potential solutions to improve participation in healthcare for autistic children.
Funder
Nancy Lurie Marks Family Foundation
Publisher
Springer Science and Business Media LLC
Reference31 articles.
1. Allegheny County Airport Authority. Pittsburgh International Airport opens first-of-its-Kind sensory-friendly space that includes real plane cabin and seating. Fly Pittsburgh; 2019. https://flypittsburgh.com/acaa-corporate/newsroom/news-releases/pittsburgh-international-airport-opens-first-of-its-kind-sensory-friendly-space-that-includes-real-plane-cabin-and-seating/.
2. Altman M, Huang TT, Breland JY. Design thinking in health care. Prevent Chron Dis. 2018. https://doi.org/10.5888/pcd15.180128.
3. Autism Center, Delaware Valley. Nemours Children's Health. 2023. https://www.nemours.org/services/swank-autism-center.html.
4. Baio J, Wiggins L, Christensen DL, Maenner MJ, Daniels J, Warren Z, Kurzius-Spencer M, Zahorodny W, Robinson C, Rosenberg White T, Durkin MS, Imm P, Nikolaou L, Yeargin-Allsopp M, Lee L, Harrington R, Lopez M, Fitzgerald RT, et al. Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites United States 2014. MMWR Surveill Summ. 2018;67(6):1–23. https://doi.org/10.15585/mmwr.ss6706a1.
5. Ben-Sasson A, Gal E, Fluss R, Katz-Zetler N, Cermak SA. Update of a meta-analysis of sensory symptoms in ASD: a new decade of research. J Autism Dev Disord. 2019;49(12):4974–96. https://doi.org/10.1007/s10803-019-04180-0.