Qualitative Study of Paediatric Advance Care Planning Through Simulation: How we did it and the Lessons Learned

Author:

Vemuri Sidharth123ORCID,Heywood Melissa24,O’Neill Jenny56,Hynson Jenny12,Williams Katrina37,Gillam Lynn16

Affiliation:

1. Department of Paediatrics, The University of Melbourne, Melbourne, VIC, Australia

2. Victorian Paediatric Palliative Care Program, The Royal Children’s Hospital, Parkville, VIC, Australia

3. Murdoch Children’s Research Institute, Parkville, VIC, Australia

4. Simulation Centre, The Royal Children’s Hospital, Parkville, VIC, Australia

5. Department of Nursing Research, The Royal Children’s Hospital, Parkville, VIC, Australia

6. Children’s Bioethics Centre, The Royal Children’s Hospital, Parkville, VIC, Australia

7. Department of Paediatrics and Education Research, Monash University, Clayton, VIC, Australia

Abstract

Simulation is a well-established experiential educational tool in health care, which allows clinicians to learn and practise skills via a replication of reality. However, its use as a research tool is novel and emerging. As we designed a phenomenological study of communication practices around paediatric advance care planning, we came to the view that simulation would be a very useful tool to enable feasible and ethical qualitative study of this complex and sensitive process, which involves discussion about a child’s death in the future and how to prepare for it. There is minimal description in the literature about how to use simulation as a qualitative research method. This article describes how we designed our study, focusing on: (1) the academic rationale for using simulation, (2) designing the simulation-based research method, (3) ensuring psychological safety of all participants in the simulation, (4) trialling the simulation, (5) the logistics of the study and (6) our reflections and learnings after using this novel method. We hope this discussion encourages other researchers to consider simulation as an innovative qualitative research method.

Funder

Bethlehem Griffiths Research Foundation

Department of Education, Australian Government

Melbourne Disability Institute

Publisher

SAGE Publications

Subject

Education

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