A shared decision-making intervention for individuals living with chronic obstructive pulmonary disease who are considering the menu of pulmonary rehabilitation treatment options; a feasibility study

Author:

Barradell AC123ORCID,Doe G1,Bekker HL45,Houchen-Wolloff L12ORCID,Robertson N6,Singh SJ12

Affiliation:

1. Department of Respiratory Sciences, Leicester Biomedical Research Centre-Respiratory, Glenfield Hospital, University of Leicester, Leicester, UK

2. Centre for Exercise and Rehabilitation Science, Leicester Biomedical Research Centre-Respiratory, Glenfield Hospital, Leicester, UK

3. National Institute for Health Research (NIHR) Applied Research Collaboration (East Midlands), College of Medicine, Biological Sciences & Psychology, Leicester General Hospital, Leicester, UK

4. Leeds Unit of Complex Intervention Development (LUICD), School of Medicine, University of Leeds, Leeds, UK

5. Research Centre for Individual Involvement, Department of Public Health, Aarhus University, Aarhus, Denmark

6. Department of Neuroscience, Psychology and Behaviour, University of Leicester, Leicester, UK

Abstract

Objectives Shared Decision Making (SDM) has potential to support Pulmonary Rehabilitation (PR) decision-making when patients are offered a menu of centre- and home-based options. This study sought to evaluate the feasibility and acceptability of a three-component PR SDM intervention for individuals with Chronic Obstructive Pulmonary Disease (COPD) and PR healthcare professionals. Methods Participants were recruited from Dec 2021–Sep 2022. Healthcare professionals attended decision coaching training and used the consultation prompt during consultations. Individuals received the Patient Decision Aid (PtDA) at PR referral. Outcomes included recruitment capability, data completeness, intervention fidelity, and acceptability. Questionnaires assessed patient activation and decisional conflict pre and post-PR. Consultations were assessed using Observer OPTION-5. Optional interviews/focus groups were conducted. Results 13% of individuals [ n = 31, 32% female, mean (SD) age 71.19 (7.50), median (IQR) MRC dyspnoea 3.50 (1.75)] and 100 % of healthcare professionals ( n = 9, 78% female) were recruited. 28 (90.32%) of individuals completed all questionnaires. SDM was present in all consultations [standardised scores were mean (SD) = 36.97 (21.40)]. Six healthcare professionals and five individuals were interviewed. All felt consultations using the PtDA minimised healthcare professionals’ bias of centre-based PR, increased individuals’ self-awareness of their health, prompted consideration of how to improve it, and increased involvement in decision-making. Discussion Results indicate the study processes and SDM intervention is feasible and acceptable and can be delivered with fidelity when integrated into the PR pathway.

Funder

National Institute for Health and Care Research (NIHR) Leicester Biomedical Research Centre

Applied Research Collaboration (ARC) East Midlands

Publisher

SAGE Publications

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