Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers-Reference-Cited by-同舟云学术

Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers

Published:2018-02-01 Issue:2 Volume:13 Page:115-124
ISSN:1556-2646
Container-title:Journal of Empirical Research on Human Research Ethics
language:en
Short-container-title:Journal of Empirical Research on Human Research Ethics

Author:

Warner Teddy D.¹^ORCID,Weil Carol J.²,Andry Christopher³,Degenholtz Howard B.⁴,Parker Lisa⁴,Carithers Latarsha J.⁵,Feige Michelle⁶,Wendler David⁵,Pentz Rebecca D.⁷

Affiliation:

1. University of New Mexico, Albuquerque, NM, USA

2. National Cancer Institute, Rockville, MD, USA

3. Boston Medical Center, MA, USA

4. University of Pittsburgh, PA, USA

5. National Institutes of Health, Bethesda, MD, USA

6. Association for the Accreditation of Human Research Protection Programs, Washington, DC, USA

7. Emory University School of Medicine, Atlanta, GA, USA

Abstract

Commentators are concerned that broad consent may not provide biospecimen donors with sufficient information regarding possible future research uses of their tissue. We surveyed with interviews 302 cancer patients who had recently provided broad consent at four diverse academic medical centers. The majority of donors believed that the consent form provided them with sufficient information regarding future possible uses of their biospecimens. Donors expressed very positive views regarding tissue donation in general and endorsed the use of their biospecimens in future research across a wide range of contexts. Concerns regarding future uses were limited to for-profit research and research by investigators in other countries. These results support the use of broad consent to store and use biological samples in future research.

Publisher

SAGE Publications

Subject

Communication,Education,Social Psychology

Link

http://journals.sagepub.com/doi/pdf/10.1177/1556264617751204

Reference54 articles.

1. Donating Tissue for Research: Patient and Provider Perspectives

2. Naming Indigenous Concerns, Framing Considerations for Stored Biospecimens

3. Differences in preferences for models of consent for biobanks between Black and White women

4. Return of results: Ethical and legal distinctions between research and clinical care

5. Research Ethics Recommendations for Whole-Genome Research: Consensus Statement

Cited by 34 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Assessing Views on Using Surplus Human Bio Specimens for Future Research among Pharmaceutical Sponsors: A Prospective Interventional Study;Journal of Young Pharmacists;2024-08-23

2. Ethical, Legal, and Practical Concerns Surrounding the Implemention of New Forms of Consent for Health Data Research: Qualitative Interview Study;Journal of Medical Internet Research;2024-08-07

3. Assessing Decisional Regret Among Biobank Sample Donors;Biopreservation and Biobanking;2024-07-29

4. Biobanks: Archives or Resources? Their Secondary Use for Forensic Purposes—A Systematic Review;Forensic Sciences;2024-02-01

5. Ethical, Legal and Practical Concerns of Implementing New Forms of Consent for Health Data Research: A Qualitative Interview Study (Preprint);2023-08-29