Parent Perceptions of Initial Feeding Experiences of Children Born With Cleft Palate in a Rural Locale

Abstract

Background and Hypothesis: An early problem frequently present in infants born with cleft lip (CL), cleft lip and palate (CLP), or cleft palate (CP) is difficulty feeding. In many cases, health-care professionals are not familiar with the appropriate feeding techniques and unable to instruct parents correctly. This problem can be particularly significant in rural areas where health-care resources are limited and children with clefts are seen on an infrequent basis. The purpose of the investigation was to study the initial feeding experiences of parents who reside in rural areas and whose children were born with CL, CLP, or CP. Method: A 29-item questionnaire was developed and administered to 26 families. The results were analyzed and summarized descriptively. Results and Conclusion: The majority of parents reported initial difficulties with feeding their infants. They indicated the need to seek information and assistance from various sources. As a result of the findings, an informational resource was developed to inform rural health-care professionals of the early feeding issues of children born with CL, CLP, or CP.