Parental Perceptions of Cerebral Palsy and Expectations of the Operation Outcomes in Greece and in Italy

Abstract

Children with cerebral palsy (CP) are often hospitalized and have long stays, as they need surgeries and operations. The perioperative period can be perplexing for the people involved. This study investigates parents’ perceptions of CP and expectations of operation and surgery outcomes in Greece and in Italy during this crucial perioperative period. A total of 120 married parents participated in the study: 60 mothers and 60 fathers who had a biological child with CP. All children had operable CP and were under continuous medical/surgical treatment. Semi-structured interviews were used for data collection. Parents expressed diverse perceptions of CP whilst they had almost the same perceptions of it in both countries. They mainly represented CP as a medical problem affecting the whole family, including the child. Parent's expectations on orthopaedic surgeries concerned improving the child's quality of life, the level of its functional impairment and the rehabilitation of its movement and gait. There were no statistically significant differences as regards country of origin and parents’ gender on perceptions of CP and expectations of operation and surgery outcomes. This study suggests that parents outline a variety of perceptions of the condition of CP and of expectations concerning operation and surgery outcomes.