Care research and disability studies: Nothing in common?

Abstract

Disability researchers have voiced the criticism that the concept of care, together with research based on it, consists of the view that disabled people are dependent non-autonomous second-class citizens. The perspectives of disability studies and care research certainly are different from each other. Disability studies analyse the oppression and exclusion of disabled people and emphasize that disabled people need human rights and control over their own lives. Care research focuses rather on care relationships, informal and formal care, care-giving work and `an ethics of care'. Nevertheless, it is suggested here that the two perspectives are not mutually exclusive and that the two groups could learn from each other's approaches. For example, the relationship between disabled people and their personal assistants has much the same characteristics as the care relationship and requires a balancing of the needs and interests of the two parties. On the other hand, access to adequate care could be perceived as a basic civil and human right.