Grief Trajectories of Bereaved Parents of Adolescents and Young Adults With Advanced Cancer: A Qualitative Analysis Using Phenomenology

Author:

Kingsley Jenny1ORCID,Taylor Mallory23,Bogetz Jori F.23,Trowbridge Amy23,Rosenberg Abby R.23,Barton Krysta S.3

Affiliation:

1. Department of Anesthesiology and Critical Care Medicine, Children’s Hospital Los Angeles, CA, USA

2. Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA

3. Palliative Care and Resilience Lab, Seattle Children’s Research Institute, Seattle, WA, USA

Abstract

Different parents grieve differently. However, research directed at understanding the important contextual or individual factors that influence the path each bereaved parent takes is lacking. In this qualitative analysis we seek to understand the array of bereaved parent experiences more completely. By deeply diving into one parent dyad using interpretive phenomenology analysis and situating that story within the conventional content analysis of 13 other bereaved parents of adolescents and young adults (AYAs) who died from advanced cancer, we illustrate the roles of religion/spirituality, maintaining a connection, and fulfilling parental roles as elements of grief processing. Clinicians and investigators should consider similar individualized approaches to understanding and supporting the grief experiences of bereaved parents before and after the death of a child.

Publisher

SAGE Publications

Subject

Life-span and Life-course Studies,Critical Care and Intensive Care Medicine,Health (social science)

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