Hospital discharge intervention developed in a dialogical way with families to prepare them to care for children with chronic diseases at home: Mixed methods study

Author:

Nóbrega Vanessa Medeiros da1ORCID,Viera Claudia Silveira2ORCID,Lorenzini Elisiane3ORCID,Neves Eliane Tatsch4,Reichert Altamira Pereira da Silva1ORCID,Vaz Elenice Maria Cecchetti5,Collet Neusa5ORCID

Affiliation:

1. Program in Nursing at the Federal University of Paraíba, João Pessoa, Brazil

2. Nursing Collegiate and the Graduate Program in Bioscience and Health at Western State University of Parana – Unioeste, Cascavel, Brazil

3. Department of Nursing and the Graduate Program in Nursing, Universidade Federal de Santa Catarina - Campus Florianópolis, Florianopolis, Brazil

4. Department of Nursing and the Graduate Program in Nursing, Universidade Federal de Santa Maria, Santa Maria, Brazil

5. Department of Public Health and the Graduate Program in Nursing, Universidade Federal da Paraíba, João Pessoa, Brazil

Abstract

A convergent parallel mixed methods design with qualitative data collection embedded in a quasi-experimental study was developed to examine the potential of three modalities of preparation for hospital discharge of the families of children with chronic diseases in terms of uncertainty levels and management of the disease at home. Caregivers of these children were divided into three groups: two experimental groups and one control group. Two scales were applied: one measured family management, and the other evaluated uncertainties in relation to the disease. In addition, an in-depth interview was conducted. Wilcoxon’s test and the integrated response index were used in data analysis to compare performance between the groups. Inductive thematic analysis was employed for the qualitative data. The data were integrated, comparing the groups before and after preparation for hospital discharge. Twenty-five family caregivers completed this study. Data integration showed that the intervention group, in which the families developed planning to prepare for discharge in a dialogical way with professionals, presented better perceptions regarding care management when compared to structured guide and usual care groups. Participation of families in planning for hospital discharge showed a reduction in uncertainties regarding the disease and better care management of children at home.

Funder

Conselho Nacional de Desenvolvimento Científico e Tecnológico

Publisher

SAGE Publications

Subject

Pediatrics,Pediatrics, Perinatology and Child Health

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