A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases

Author:

Aiyegbusi Olalekan Lee1ORCID,Nair Devika2,Peipert John Devin3,Schick-Makaroff Kara4,Mucsi Istvan5

Affiliation:

1. Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, B15 2TT, UK National Institute for Health Research (NIHR) Applied Research Centre, West Midlands, UK

2. Division of Nephrology and Hypertension, Vanderbilt University Medical Center, Nashville, TN, USA Vanderbilt O’Brien Center for Kidney Disease, Nashville, TN, USA

3. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA

4. Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada

5. Multiorgan Transplant Program, University Health Network and Division of Nephrology, Department of Medicine, University of Toronto, ON, Canada

Abstract

An application of telemedicine of growing interest and relevance is the use of personal computers and mobile devices to collect patient-reported outcomes (PROs). PROs are self-reports of patients’ health status without interpretation by anyone else. The tools developed to assess PROs are known as patient-reported outcomes measures (PROMs). The technological innovations that have led to an increased ownership of electronic devices have also facilitated the development of electronic PROMs (ePROMs). ePROMs are a conduit for telemedicine in the care of patients with chronic diseases. Various studies have demonstrated that the use of ePROMs in routine clinical practice is both acceptable and feasible with patients increasingly expressing a preference for an electronic mode of administration. There is increasing evidence that the use of electronic patient-reported outcome (ePROMs) could have significant impacts on outcomes valued by patients, healthcare providers and researchers. Whilst the development and implementation of these systems may be initially costly and resource-intensive, patient preferences and existing evidence to support their implementation suggests the need for continued research prioritisation in this area. This narrative review summarises and discusses evidence of the impact of ePROMs on clinical parameters and outcomes relevant to chronic diseases. We also explore recently published literature regarding issues that may influence the robust implementation of ePROMs for routine clinical practice.

Funder

birmingham biomedical research centre

NIHR Applied Research Centre

university of birmingham

university hospitals birmingham nhs foundation trust

UK Research and Innovation

Health Research and Quality/Patient-Centered Outcomes Research Institute Learning Health Systems Scholar K12 award

canadian institutes of health research

the Kidney Foundation of Canada

Publisher

SAGE Publications

Subject

Medicine (miscellaneous)

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