Narratives about distributed health literacy during the COVID-19 pandemic

Author:

Silva Susana12ORCID,Machado Helena1,Galasso Ilaria34,Zimmermann Bettina M546,Botrugno Carlo7

Affiliation:

1. Institute for Social Sciences, University of Minho, Portugal

2. Centre for Research in Anthropology (CRIA-UMinho/IN2PAST), Portugal

3. University College Dublin, Ireland

4. Institute of History and Ethics in Medicine, Department of Clinical Medicine, TUM School of Medicine and Health, Technical University of Munich, Germany

5. Institute for Biomedical Ethics, University of Basel, Switzerland

6. Institute of Philosophy & Multidisciplinary Center for Infectious Diseases, University of Bern, Switzerland

7. Research Unit on Everyday Bioethics and Ethics of Science, Department of Legal Sciences, University of Florence, Italy

Abstract

The promotion of health literacy was a key public health strategy during the COVID-19 pandemic. However, the role of social networks and relationships for support with health literacy-related tasks in the context of the COVID-19 pandemic is scarcely understood. Moving beyond traditional notions of health literacy, which focus on individual skills and knowledge, this study uses the concept of distributed health literacy to explore how individuals make meaning of and respond to health literacy and make their literacy skills available to others through their relational and socially situated and lived experiences of the COVID-19 pandemic. Drawing on 89 semi-structured interviews conducted in three European countries (Italy, Portugal, and Switzerland) between October and December 2021, we found narratives of stabilization, hybridization, and disruption that show how health literacy concerning COVID-19 is a complex social construct intertwined with emotional, cognitive, and behavioral responses distributed among individuals, communities, and institutions within socioeconomic and political contexts that affect their existence. This paper opens new empirical directions to understand the critical engagement of individuals and communities toward health information aimed at making sense of a complex and prolonged situation of uncertainty in a pandemic.

Funder

Fondazione Cariplo

Horizon 2020 Framework Programme

University of Basel Forschungsfonds for Junior Researchers

Publisher

SAGE Publications

Subject

Health (social science)

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